Response to IACC meeting

I’D LIKE TO RESPOND TO THIS ARTICLE (“AUTISTIC ADVOCATES CLASH WITH AUTISM PARENTS AT GOVERNMENT COMMITTEE MEETING”) BY SAYING THIS: NO ONE, AND I MEAN NO ONE, SHOULD BE TALKING ABOUT WHAT’S BEST FOR ME BESIDES ME. YES, MY PARENTS KNOW ME BEST IN THE WORLD, BUT THAT DOESN’T MEAN THEY KNOW BETTER. IT PERPLEXES ME THAT WE ARE HAVING THIS DEBATE STILL, AND PEOPLE DON’T SEE HOW LUDICROUS IT IS TO HAVE AN AUTISTIC GROUP REPRESENTED BY NON-AUTISTICS. IMAGINE THE NAACP REPRESENTED BY WHITES. RECALL THAT IMAGE OF A GROUP OF WHITE MEN SIGNING LEGISLATION LIMITING WOMEN’S BIRTH CONTROL… YET IT IS TOTALLY OKAY FOR MANY AUTISTICS TO BE AFFECTED BY THE WILL OF NT’S.

I SIMPLY SAY THIS: IF YOU WANT THE VIEWS OF NONVERBAL AUTISTICS TO BE HEARD, INVITE THEM TO THE TABLE. MAKE SURE THEY CAN ACCESS THE MEETING WITH THE SUPPORT THEY NEED. SEEK OUT AUTISTIC PEOPLE WHO ARE NONVERBAL, AND LISTEN TO WHAT THEY HAVE TO SAY. LET YOUR EXPERIENCE OF HOW YOU RAISED A PERSON WHO IS AUTISTIC BE SHADOWED BY THE AUTISTIC PERSON’S EXPERIENCE OF NOT FITTING IN A WORLD THAT THINKS HE IS BROKEN.

RIGHT NOW, THE BIGGEST HURDLES WE FACE ARE THE ATTITUDES OF COMMUNITY MEMBERS AND THE IMPOSED LIMITS OF PARENTS. LET YOURSELF ABSTAIN FROM THE PITY PARTY THAT SEEMS TO BE SO MUCH A PART OF THE AUTISM COMMUNITY, AND BELIEVE THAT YOUR CHILD WILL CONTINUE TO DEVELOP AND GAIN NEW SKILLS. MOST OF ALL, GIVE THEM THE CHANCE TO HAVE WHAT WE EACH ASPIRE TO: AN INDEPENDENT LIFE, LOVE, HOUSING THAT SUPPORTS THEIR VISION OF WHAT THEY WANT, A CHANCE TO WORK, MAKE A DECENT LIVING, AND FIND SATISFACTION IN THEIR DAILY LIFE. BESIDES THAT, THEY WANT TO BE ACCEPTED FOR WHO THEY ARE OR KNOW THAT IF THEY NEED SUPPORT, THEY CAN GET IT. FOR ME, THIS IS WHAT OUR RESEARCH DOLLARS SHOULD BE SPENT ON. GIVE AUTISTICS THE MAJORITY PLACE AT THE IACC, AND I GUARANTEE YOU WILL SEE THESE THINGS GET ADRESSED IN A WAY THAT MAKES SENSE FOR US.

#IACC

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One thought on “Response to IACC meeting

  1. OMG Niko! The eloquence with which you’ve expressed this concept is perfect! Of course, this does not surprise me at all. Matteo will respond in a minute. We’re on board with you 100%. Let us know if we can help you in this quest. We will be sharing your post on matteomusso.com and on our Facebook page. We’re in this together! Thanks for sharing your brave truths and speaking for so many people with autism!

    Liked by 1 person

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